I am currently an Assistant Professor and Head of Subject in Children’s Nursing (Pediatric) at University College Dublin, Ireland. In 1998, I completed my primary nurse registration degree from India. I practised as a neonatal nurse in Delhi, India, focusing on family-centred and family-focused care in the Neonatal Nursing Care Unit. I have been working and studying in Ireland since 2003. I have over 18 years of clinical experience in the speciality of paediatric nursing before I moved to academia. I have worked in various roles, including the clinical nurse and nurse managerial role within the Irish and Indian paediatric healthcare services. My doctoral research study was the first of its kind to act as an initial enquiry into the lived experience of Irish families of children with Mucopolysaccharidosis (MPS). Since completing my PhD, I have developed a child and family-focused research programme to learn, understand and respond to the care and support needs of those living with rare and complex conditions. I am leading multiple inter-disciplinary and cross-agency research projects in partnership with children and families, which employ various creative methodologies to facilitate engagement in the research process and shed light on what it means to live with rare and medically complex health conditions. The programs focus on patient and public involvement (PPI) and seek to enhance healthcare professionals’ knowledge and care skills who care for these families. I am the founder and lead of the Rare Disease Research Partnership (RAinDRoP) in Ireland. This is a national collaborative research partnership with families of children and person living with rare diseases in Ireland. I have been awarded an honorary research associate fellowship with the Royal College of Surgeons, Ireland, and I am the recipient of the prestigious Fulbright Scholar award. Please review my academic profile and synergistic activities at https://people.ucd.ie/suja.somanadhan/about