The Family Synthesis Study website was developed as part of Dr. Kathy Knafl’s synthesis study on the intersection of family life and childhood chronic conditions, and is intended to be of use to practitioners who care for children with chronic conditions as well as family researchers and educators. Among other things, it includes reference lists for the over 1000 research reports included in their sample of research reports (organized by both study design and chronic condition) and resources for anyone interested in undertaking a synthesis project. For more information contact IFNA member, Kathleen Knafl.
Dr. Regina Lee Advances Care of Children and Adolescents in School Settings in Hong Kong
Dr. Regina Lee, RN, PhD, PHN, FHKCPN, is an Associate Professor, School of Nursing, Hong Kong Polytechnic University, Hong Kong. She also serves as Deputy Director, WHO Collaborating Centre for Community Health Services. Dr. Lee is committed to advancing family-centered care to meet the health needs of children and adolescents in school settings and hospital care. She is currently conducting research which extends school-based interventions into family-based programs. Dr. Lee currently serves as an IFNA Country Liaison. For more information, contact IFNA member Regina Lee.
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Dr. Mary Jo Gilmer Studies the Family Experience of Childhood Cancer
Mary Jo Gilmer, PhD, MBA, RN-BC, FAAN, is a Professor of Nursing and Professor of Medicine (Paediatrics) at Vanderbilt University, Nashville, Tennessee, USA. She currently serves as the Co-Director of the Pediatric Palliative Care Research Team at Monroe Carell Jr. Children’s Hospital at Vanderbilt University. Her research interests include parent-sibling bereavement, parent-child communication, and interventions to reduce suffering in children with cancer.
Funded studies include interviews with bereaved parents and siblings after a child died of cancer. The long-term goal of this research is to reduce the suffering and morbidity of families affected by cancer and the loss of a child through controlled, longitudinal research on the psychosocial outcomes of these families. Dr. Gilmer’s current research is focused on the role of animal-assisted therapy with children newly diagnosed with cancer and their families and was recently featured on CNN. One potential outcome is expansion of a nurse-driven model of care aimed at improving long-term psychosocial health for children and their parents. For more information, contact IFNA member Mary Jo Gilmer.
Jane Karpa Advances Family Centered Psychiatric Nursing Practice
Jane Karpa, BA, RPN, CMHW(A), MMFT, Assistant Professor, Chair of the Department of Psychiatric Nursing, Faculty of Health Sciences, Brandon University, Winnipeg, Manitoba, Canada, is committed to advancing a family nursing perspective in psychiatric nursing practice. She is currently engaged in doctoral studies at the University of Manitoba and her research focuses on families’ experiences of living with Acquired Brain Injury. She also currently serves as the co-chair of the Teaching Resources Subcommittee of the IFNA Education Committee. For more information, contact IFNA member Jane Karpa.
Dr. Kiyoko Kamibeppu Studies Prevention of Child Abuse in Japan
Kiyoko Kamibeppu, RN, PhD, Professor, Department of Family Nursing, Division of Health Sciences & Nursing, Graduate School of Medicine, the University of Tokyo, Japan, focuses her research on childhood cancer survivorship and prevention of child abuse. For more than a decade, she has advocated for the offering of preventative child abuse interventions during pregnancy, which is now a priority in the Ministry of Health, Labour, and Welfare in Japan. She recently developed the Maternal Mental Health Promotion Program (MMHPP) for expectant mothers. Dr. Kamibeppu currently serves on the Board of Directors of the Japanese Association for Research in Family Nursing (JARFN) and is chairperson of Research Committee and also a member of the Editorial Board of the Japanese Journal of Research in Family Nursing. For more information, please contact IFNA member, Kiyoko Kamibeppu.