The Conference Committee is pleased to promote the Expert Lectures that will be presented at the conference (IFNC17).
Expert lectures provide didactic content on a focused topic related to family nursing research, education, or practice.
Using Expressive Art Therapies to Promote Family Connection in Persons Living With Serious Illness
The Alliance against Violence and Adversity (AVA) Program
Partnering with consumers, experts in their health
Tips and Strategies for How Family Nurses Can Use Advances in Genomics to Promote Family Strengths
Using Expressive Art Therapies to Promote Family Connection in Persons Living With Serious Illness
Level: Novice / Intermediate
Description: Expressive art therapies (music and art therapy) offer a unique avenue for fostering family connections in individuals living with serious illnesses. Families can create meaningful moments that transcend the challenges of illness and evoke positive emotions and memories. This lecture describes the biopsychosocial impacts of expressive art therapies for persons living with serious illness, and how they may help families cope with adversity. This session highlights how shared art and musical experiences can strengthen emotional bonds, improve communication, provide a sense of normalcy and joy amidst challenging times, and promote a comforting environment for patients and their families.
Presenters:
C. Robert Bennett, PhD, PPCNP-BC | Mayo Clinic, Phoenix, Arizona, USA
Verna L. Hendricks Ferguson, PhD, RN, FPCN, FAAN | Trudy Busch Valentine School of Nursing Saint Louis University, USA
The Alliance against Violence and Adversity (AVA) Program
To learn more or get involved, visit AVAtraining.ca or follow us on social media @avatraining_ca.
Level: Novice / Intermediate / Advanced
Description: AVA is about creating the capacity to transform population health/social services promoting health/wellness of girls, women, and gender-diverse people (GWGDP) at risk/affected by violence and adversity over the life-cycle. A collaborative, innovative, cross-sectoral/disciplinary/jurisdictional training platform and Women’s and Girls’ Health Hub (WGHH), two Indigenous WGHH and a research initiative, united in the common objective to address the urgent issue of gender-based violence and improve outcomes for GWGDP. For nearly 30 years, preventing and addressing violence against girls and women has been a policy priority across Canada, yet social problem persists with family violence rates increasing and GWGDP’s health/wellness outcomes worsening.
Presenters:
Nicole Letourneau, PhD RN FCAHS FAAN FCAN FRSC | AVA Scientific Director | University of Calgary and the Owerko Centre at the Alberta Children’s Hospital Research Institute, Canada
Carrie Pohl, MSW, AVA Health Research Training Platform Director University of Calgary and the Owerko Centre at the Alberta Children’s Hospital Research Institute, Canada
Andrea J. Deane, BScAHN, MBA, AVA Women’s & Girls’ Health Hub Director; Chair of AVA Knowledge Mobilization Committee and the Strategy & Evidence Evaluation Committee; University of Calgary and the Owerko Centre at the Alberta Children’s Hospital Research Institute, Canada
Co-designing digital safety netting interventions with, and for, families: 10+ years of research exploring the why, the what and the how.
Level: Intermediate
Description: This expert lecture will explore the importance of involving end users (families), in co-designing interventions intended to be used by them, if these interventions are going to be effective. The experiences of developing a safety netting intervention with, and for, families with acutely sick children will be used as an exemplar. This exemplar will illustrate the rationale for co-design, the evolving definition of, and need for, safety netting interventions and the processes involved. The complex interventions framework was used to structure the approach taken and its application will be delineated in each of the steps depicting the co-designed research programme.
Presenter:
Sarah Neill, PhD, PGC Res. Deg. Sup., PGDE, MSc, BSc (Hons), RGN, RSCN, RNT | Professor of Nursing, School of Nursing and Midwifery, University of Plymouth | UK
Partnering with consumers, experts in their health
Level: Intermediate
Description: Consumers are the experts in their health and should be an integral part of the development of research, education and health policies. Yet most health education, research and health service delivery are designed without the consumer’s voice. Working with consumers can be challenging and time consuming. Having the consumer voice within your research, education and policy development builds trust and a meaningful relationship. The long-term benefit is an equal partnership to enable best consumer outcomes. This plenary will cover how to build and sustain a consumer partnership for the development of research and education.
Presenters:
Elisabeth Coyne | Senior Lecturer | Griffith University, Australia
Karin Dieperink | Professor | University of Southern Denmark, Denmark
Tips and Strategies for How Family Nurses Can Use Advances in Genomics to Promote Family Strengths
Level: Novice / Intermediate / Advanced
Description: Family nurses are well-positioned to use advances in genomics to promote family strengths. However, many family nurses feel unprepared to fully incorporate these advances into their teaching, research and practice. The goal of this expert lecture is to provide practical tips and strategies for how family nurses can confidently use advances in genomics to promote family strengths by fostering a shared understanding about genetic conditions and genetic risk, empowering families to make well-informed decisions, enhancing family communication about decision-making regarding genetic testing and treatment options, and assessing the impact of being tested for and living with a genetic condition.
Presenter:
Marcia Van Riper, PhD, RN, FAAN | Professor | University of North Carolina at Chapel Hill, USA
Encouraging and Choosing Love During End-of-Life and Palliative Care: A Moral Obligation for Nurses Working with Families?
Level: Intermediate
Description: The importance of love in the healing process, even at the end of life, is a complex notion that nurses need not trivialize. Love lets family members appear to be who they are as we work together to soften illness suffering. Specific clinical practices encourage family members and ourselves to choose love at the end of one’s life. Clinical practices that bring forth love include challenging constraining illness beliefs; speaking the unspeakable; and small acts of kindness. Clinical examples will highlight the practices that bring forth love. Sometimes other disciplines can misunderstand our clinical practices and negate compassion and love.
Dr Lorraine M Wright, C.M. | Professor Emeritus of Nursing | University of Calgary, Canada
A Child-Centred Research Checklist to Improve the Design and Reporting of Paediatric Research Studies
Level: Novice, Intermediate, Advanced
Description: The expert lecture will include an overview of the process of developing a checklist and go through the five sequential stages of how the child-centred research checklist was developed. The lecturers will then demonstrate with an exemplar how to use the child-centred research checklist. This will then move into an interactive phase where participants will use the child-centred research checklist on a research proposal provided by the lecturers. The expert lecture will close with an invitation for participants to join the next phase of this project, being engagement with children and their families to refine the checklist.
Dr Mandie Foster (PhD)1,2, Professor Lisa Whitehead (PhD), L2,³, Associate Professor Therese A. O’Sullivan (PhD)4, Professor Evalotte Mörelius (PhD) 2,5
1 Auckland University of Technology, School of Clinical Sciences, Auckland, New Zealand; 2 Edith Cowan University, School of Nursing and Midwifery, Joondalup, Western Australia, Australia; ³ Centre for Postgraduate Nursing Studies, University of Otago, Christchurch, New Zealand; 4 Nutrition & Health Innovation Research Institute, School of Health and Medical Science, Edith Cowan University, Joondalup, Western Australia, Australia; 5 Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden