Bibliography developed by Dr. Kathleen Knafl, Professor, School of Nursing, University of North Carolina at Chapel Hill, USA.
Download the full family research bibliography
Updated October 2023
Synthesis Methods
Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8, 19-32. https://doi.org/10.1080/1364557032000119616.
Colquhoun, H. L., Levac, D., O’Brien, K. K., Straus, S., Tricco, A. C., Perrier, L., Kastner, M., & Moher, D. (2014). Scoping reviews: time for clarity in definition, methods, and reporting. Journal of Clinical Epidemiology, 67(12), 1291-1294. https://doi.org/10.1016/j.jclinepi.2014.03.013.
Conn, V., & Sells, T. (2014a). Is it time to write a review article? Western Journal of Nursing Research, 36, 435-439. https://doi.org/10.1177/0193945913519060
Conn, V., & Sells, T. (2014b). WJNR welcomes umbrella reviews. Western Journal of Nursing Research, 36, 147-151. https://doi.org/10.1177/0193945913506968
Cooper, H. (2010). Research synthesis and meta-analysis: A step-by-step approach (4th ed.). Sage, Thousand Oaks, CA.
Cooper, H. (1982). Scientific guidelines for conducting integrative research reviews. Review of Educational Research, 52, 291-302. https://doi.org/10.1080/1364557032000119616.
Crandell, J., Voils, C., & Sandelowski M. (2012). Bayesian approaches to the synthesis of qualitative and quantitative research findings. In Synthesizing qualitative research: Choosing the right approach (Hannes, K. & Lockwood, C. eds.), Wiley-Blackwell, Oxford, UK, pp. 137-159.
Davidson, K., Goldstein, M., Kaufmann, P., Knatterus, G., Orlean, C., Spring, B., Truudeau, K., & Whitlock, E. (2003). Evidence-based behavioral medicine: What is it and how do we achieve it? Annals of Behavioral Medicine, 26 (3), 161-171. https://doi.org/10.1207/S15324796ABM2603_01.
Egan, M., Bambra, C., Petticre, M., & Whitehead, M. (2009). Reviewing evidence on complex social interventions: Appraising implementation in systematic reviews of the health effects of organizational-level workplace interventions. Journal of Epidemiology & Community Health 63, 4-11. http://dx.doi.org/10.1136/jech.2007.071233.
Gough, D., Thomas, J., & Oliver, S. (2012). Clarifying differences between review designs and methods. Systematic Reviews, 1, 28. http://systematicreviewsjournal.com/content/1/1/28
Higgins, J., & Green, S. (2008). Cochrane handbook for systematic reviews of interventions. John Wiley & Sons, Hoboken, NJ.
Knafl, K. (2015). Family synthesis research: Possibilities and challenges. Journal of Family Nursing, 21(1), 3-10. https://doi.org/10.1177/1074840714568740.
Kokol, P. (2021). Meta approaches in knowledge synthesis in nursing: A bibliometric analysis. Nursing Outlook, 69(5), 815-825. https://doi.org/10.1016/j.outlook.2021.02.006
McGaghie, W. (2015). Varieties of integrative scholarship: Why rules of evidence, criteria, and standards matter. Academic Medicine, 90, 294-302. https://doi.org/10.1097/acm.0000000000000585
Pope, C., Mays, N., & Popay, J. (2007). Synthesizing qualitative and quantitative health evidence. Open University Press, Berkshire, UK.
Sandelowski, M., Leeman, J., Knafl, K., & Crandell, J. (2013). Text-in-Context: A method for extracting findings in mixed-methods mixed research synthesis studies. Journal of Advanced Nursing, 69, 1428-37. https://doi.org/10.1111/jan.12000.
Sandelowski, M. (2008). Reading, writing, and systematic review. Journal of Advanced Nursing 64, 104-110. https://doi.org/10.1111/j.1365-2648.2008.04813.x.
Sandelowski, M., & Barroso, J. (2007) Handbook for synthesizing qualitative research. Springer, New York, NY.
Published Syntheses
Alfaro-Díaz, C., Svavarsdottir, E. K., Esandi, N., Klinke, M. E., & Canga-Armayor, A. (2022). Effectiveness of nursing interventions for patients with cancer and their family members: A systematic review. Journal of Family Nursing, 28(2), 95-114. https://doi.org/10.1177/10748407211068816
Berry, D., Sheehan, R., Heschel, R., Knafl, K., Melkus, G., & Grey, M. (2004). Family-based interventions for childhood obesity: a review. Journal of Family Nursing, 10(4), 429-449. https://doi.org/10.1177/1074840704269848
Blower, S., Swallow, V., Maturana, C., Stones, S., Phillips, R., Dimitri, P., … & Martin-Kerry, J. (2020). Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review. Archives of Disease in Childhood, 105(11), 1093-1104. http://doi.org/10.1136/archdischild-2020-319103
Cabote, C. J., Bramble, M., & McCann, D. (2015). Family caregivers’ experiences of caring for a relative with younger onset dementia. Journal of Family Nursing, 21(3), 443–468. https://doi.org/10.1177/1074840715573870.
Chesla, C. (2010). Do family interventions improve health? Journal of Family Nursing, 16, 355-377. https://doi.org/10.1177/1074840710383145.
Crandell, J. L., Sandelowski, M., Leeman, J., Havill, N. L., & Knafl, K. (2018). Parenting behaviors and the well-being of children with a chronic physical condition. Families, Systems, & Health, 36(1), 45–61. https://doi.org/10.1037/fsh0000305.
De Graaf, I., Speetjens, P., Smit, F., De Wolff, M., & Tavecchio, L. (2008). Effectiveness of the Triple P Positive Parenting Program on parenting: A meta‐analysis. Family Relations, 57(5), 553-566. https://doi.org/10.1111/j.1741-3729.2008.00522.x
Eira Nunes, C., Roten, Y., El Ghaziri, N., Favez, N., & Darwiche, J. (2021). Co‐parenting programs: A systematic review and meta‐analysis. Family Relations, 70(3), 759-776. https://doi.org/10.1111/fare.12438
Emmanuel, C. J., Knafl, K. A., Hodges, E. A., Docherty, S. L., O’Shea, T. M., & Santos Jr, H. P. (2022). Family members’ experience of well‐being as racial/ethnic minorities raising a child with a neurodevelopmental disorder: A qualitative meta‐synthesis. Research in Nursing & Health, 45(3), 314-326. https://doi.org/10.1002/nur.22217.
Few‐Demo, A. L., & Allen, K. R. (2020). Gender, feminist, and intersectional perspectives on families: A decade in review. Journal of Marriage and Family, 82(1), 326-345. https://doi.org/10.1111/jomf.12638
Foster, M., Whitehead, L., & Maybee, P. (2016). The parents’, hospitalized child’s, and health care providers’ perceptions and experiences of family-centered caser within a pediatric critical case setting: A synthesis of quantitative research. Journal of Family Nursing, 22, 6-73. https://doi.org/10.1177/1074840715618193.
Ganong, L., Coleman, M., Sanner, C., & Berkley, S. (2022). Effective stepparenting: Empirical evidence of what works. Family relations, 71(3), 900-917. https://doi.org/10.1111/fare.12624
Gilliss, C. L., Pan, W., & Davis, L. L. (2019). Family involvement in adult chronic disease care: Reviewing the systematic reviews. Journal of Family Nursing, 25(1), 3-27. https://doi.org/10.1177/1074840718822365
Golfenshtein, N., Srulovici, E., & Deatrick, J. A. (2016). Interventions for reducing parenting stress in families with pediatric conditions: An integrative review. Journal of Family Nursing, 22(4), 460-492. https://doi.org/10.1177/1074840716676083
Gutiérrez-Alemán, T., Esandi, N., Pardavila-Belio, M. I., Pueyo-Garrigues, M., Canga-Armayor, N., Alfaro-Diaz, C., & Canga-Armayor, A. (2021). Effectiveness of educational programs for clinical competence in family nursing: A systematic review. Journal of Family Nursing, 27(4), 255-274. https://doi.org/10.1177/10748407211038683
Havill, N., Fleming, L., & Knafl, K. (2019). Well siblings of children with chronic illness: A synthesis research study. Research in Nursing & Health, 42, 334-348. https://doi.org/10.1002/nur.21978.
Herzer, M., Godiwala, N., Hommel, K., Drsicoll, K., Mitchel, M., Crosby, L., & Modi, A. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental and Behavioral Pediatrics, 31, 26-34. https://doi.org/10.1097%2FDBP.0b013e3181c7226b.
Holmbeck, G., Greenley, R., Coakley, R., Greco, J., & Hagstrom, J. (2006). Family functioning in children and adolescents with spina bifida: An evidence-based review of research and interventions. Developmental and Behavioral Pediatrics, 27, 249-277.
Jensen, T. M. (2022). Stepparent–child relationships and child outcomes: A systematic review and meta-analysis. Journal of Family Nursing, 28(4), 321-340. https://doi.org/10.1177/10748407221097460
Jerofke-Owen, T. A., McAndrew, N. S., Gralton, K. S., Totka, J. P., Weiss, M. E., Fial, A. V., & Sawin, K. J. (2022). Engagement of families in the care of hospitalized pediatric patients: A scoping review. Journal of Family Nursing, 28(2), 151-171. https://doi.org/10.1177/10748407211048894
Knafl, K., Deatrick, J., Gallo, A., & Skelton, B. (2021). Tracing the use of the Family Management Framework and measure: A scoping review. Journal of Family Nursing, 27(2), 87-106. https://doi.org/10.1177/1074840721994331.
Lee, A., Knafl, K., & Van Riper, M. (2021). Family variables and quality of life in children with down syndrome: A scoping review. International Journal of Environmental Research and Public Health, 18(2), 419. https://doi.org/10.3390/ijerph18020419.
Leonard, R. A., Linden, M., & Grant, A. (2018). Family-focused practice for families affected by maternal mental illness and substance misuse in home visiting: A qualitative systematic review. Journal of Family Nursing, 24(2), 128-155. https://doi.org/10.1177/1074840718770612
Lindahl, B., & Lindblad, B. M. (2011). Family members’ experiences of everyday life when a child is dependent on a ventilator: A metasynthesis study. Journal of Family Nursing, 17(2), 241-269. https://doi.org/10.1177/1074840711405392
Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65(1), 207-224. https://doi.org/10.1111/fare.12185
Lummer-Aikey, S., & Goldstein, S. (2021). Sibling adjustment to childhood chronic illness: An integrative review. Journal of Family Nursing, 27(2), 136-153. https://doi.org/10.1177/1074840720977177
Martire, L. M., Lustig, A. P., Schulz, R., Miller, G. E., & Helgeson, V. S. (2004). Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology, 23(6), 599–611. https://doi.org/10.1037/0278-6133.23.6.599.
McCann, D., Bull, R., & Winzenberg, T. (2015). Sleep deprivation in parents caring for children with complex needs at home: A mixed methods systematic review. Journal of Family Nursing, 21(1), 86-118. https://doi.org/10.1177/1074840714562026
Nunes, C. E., Roten, Y. D., Ghaziri, N. E., Favez, N., & Darwiche, J. (2021). Co-parenting programs: A systematic review and meta-analysis. Family Relations, 70(3), 759-776. https://doi.org/10.1111/fare.l2438
Orpin, J., Rodriguez, A., Harrop, D., Mills, E., Campbell, F., Martin-Kerry, J., … & Swallow, V. (2023). Supportive use of digital technologies during transition to adult healthcare for young people with long-term conditions, focusing on Type 1 diabetes mellitus: A scoping review. Journal of Child Health Care, 13674935231184919. https://doi.org/10.1177/13674935231184919
Östlund, U., & Persson, C. (2014). Examining family responses to family systems nursing interventions: An integrative review. Journal of Family Nursing, 20(3), 259-286. https://doi.org/10.1177/1074840714542962
Psihogios, A. M., Fellmeth, H., Schwartz, L. A., & Barakat, L. P. (2019). Family functioning and medical adherence across children and adolescents with chronic health conditions: a meta-analysis. Journal of Pediatric Psychology, 44(1), 84-97. https://doi.org/10.1093/jpepsy/jsy044.
Pu, L., Chen, H., Jones, C., & Moyle, W. (2023). Family involvement in pain management for people living with dementia: an integrative review. Journal of Family Nursing, 29(1), 43-58. https://doi.org/10.1177/10748407221114502
Puureveen, G., Baumbusch, J., & Gandhi, P. (2018). From family involvement to family inclusion in nursing home settings: A critical interpretive synthesis. Journal of Family Nursing, 24(1), 60-85. https://doi.org/10.1177/1074840718754314.
Rechenberg, K., Grey, M., & Sadler, L. (2017). Stress and posttraumatic stress in mothers of children with type 1 diabetes. Journal of Family Nursing, 23(2), 201–225. https://doi.org/10.1177/1074840716687543.
Rintala, T.-M., Jaatinen, P., Paavilainen, E., & Åstedt-Kurki, P. (2013). Interrelation between adult persons with diabetes and their family: A systematic review of the literature. Journal of Family Nursing, 19(1), 3-28. https://doi.org/10.1177/1074840712471899
Skelton, B., Knafl, K., Van Riper, M., Fleming, L., & Swallow, V. (2021). Care coordination needs of families of children with Down syndrome: A scoping review to inform development of mHealth applications for families. Children, 8(7), 558. https://doi.org/10.3390/children8070558.
Smith, J. M., & Estefan, A. (2014). Families parenting adolescents with substance abuse—Recovering the mother’s voice: A narrative literature review. Journal of Family Nursing, 20(4), 415-441. https://doi.org/10.1177/1074840714554397
Solomon, D. N., Hansen, L., Baggs, J. G., & Lyons, K. S. (2015). Relationship quality in non-cognitively impaired mother-daughter care dyads. Journal of Family Nursing, 21(4), 551–578. https://doi.org/10.1177/1074840715601252.
Stahl, S. T., Rodakowski, J., Saghafi, E. M., Park, M., Reynolds, C. F., & Dew, M. A. (2016). Systematic review of dyadic and family‐oriented interventions for late‐life depression. International Journal of Geriatric Psychiatry, 31(9), 963-973. https://doi.org/10.1002/gps.4434.
Swallow, V., Macfadyen, A., Santacroce, S. J., & Lambert, H. (2012). Fathers’ contributions to the management of their child’s long‐term medical condition: A narrative review of the literature. Health Expectations, 15(2), 157-175. https://doi.org/10.1111/j.1369-7625.2011.00674.x
Tapp, D. (1995). Impact of ischemic heart disease: Family nursing research, 1984-1993. Journal of Family Nursing, 1(1), 79-104. https://doi.org/10.1177/107484079500100106
Welch, M.G., & Meyers, M.M. (2016). Advances in family-based interventions in the neonatal ICU. Current Opinions in Pediatrics, 28(2), 163-169. https://doi.org/10.1097/MOP.0000000000000322.
Van Schoors, M., Caes, L., Knoble, N. B., Goubert, L., Verhofstadt, L. L., & Alderfer, M. A. (2016). Systematic review: Associations between family functioning and child adjustment after pediatric cancer diagnosis: A meta-analysis. Journal of Pediatric Psychology, 42(1). https://doi.org/10.1093/jpepsy/jsw070.
Van Schoors, M., Caes, L., Verhofstadt, L. L., Goubert, L., & Alderfer, M. A. (2015). Systematic review: Family resilience after pediatric cancer diagnosis. Journal of Pediatric Psychology, 40(9), 856-868. https://doi.org/10.1093/jpepsy/jsv055.
Warner, A., Dorsen, C., Navarra, A.-M. D., & Cohen, S. (2021). An integrative review of experiences parenting transgender and gender diverse children. Journal of Family Nursing, 27(4), 304-326. https://doi.org/10.1177/10748407211001559
West, P., Van Riper, M., Wyatt, G., Lehto, R., Douglas, S. N., & Robbins, L. (2020). Adaptation to technology use in families of children with complex communication needs: An integrative review and family theory application. Journal of Family Nursing, 26(2), 153-178. https://doi.org/10.1177/1074840720915536
Wilkins, K. & Woodgate, R. (2005). A review of qualitative research on the childhood cancer experience from the perspective of siblings: A need to give them voice. Journal of Pediatric Oncology Nursing, 22, 305-319. https://doi.org/10.1177/1043454205278035.