Bibliography developed by Dr. Kathleen Knafl, Professor, School of Nursing, University of North Carolina at Chapel Hill, USA
Download the full family research bibliography
Updated October 2023
Alfaro-Díaz, C., Svavarsdottir, E. K., Esandi, N., Klinke, M. E., & Canga-Armayor, A. (2022). Effectiveness of nursing interventions for patients with cancer and their family members: A systematic review. Journal of Family Nursing, 28(2), 95-114. https://doi.org/10.1177/10748407211068816
Berry, D., Sheehan, R., Heschel, R., Knafl, K., Melkus, G., & Grey, M. (2004). Family-based interventions for childhood obesity: A review. Journal of Family Nursing, 10, 429-449. https://doi.org/10.1177/1074840704269848.
Bettencourt, A. F., Gross, D., & Breitenstein, S. (2019). Evaluating implementation fidelity of a school-based parenting program for low-income families. Journal of School Nursing, 35(5), 325-336. https://doi.org/10.1177/1059840518786995.
Bleijenberg, N., Janneke, M., Trappenburg, J.C., Ettema, R.G., Sino, C.G., Heim, N., Hafsteindóttir, T.B., Richards, D.A., & Schuurmans, M.J. (2018). Increasing value and reducing waste by optimizing the development of complex interventions: Enriching the development phase of the Medical Research Council (MRC) Framework. International Journal of Nursing Studies, 79, 86-93. https://doi.org/10.1016/j.ijnurstu.2017.12.001.
Bowen, D.J., Kreuter, M., Spring, B., Cofta-Woerpel, L., Linnan, L., Weiner, D., Bakken, S., Kaplan, C.P., Squiers, L., Fabrizio, C., & Fernandez, M. (2009). How we design feasibility studies. American Journal of Preventive Medicine, 36(5), 452-457. https://doi.org/10.1016/j.amepre.2009.02.002.
Brakema, E. A., van der Kleij, R. M., Poot, C. C., Chavannes, N. H., Tsiligianni, I., Walusimbi, S., An, P. L., Sooronbaev, T., Numans, M. E., Crone, M. R., Reis, R. R., & FRESH AIR collaborators. (2021). A systematic approach to context-mapping to prepare for health interventions: development and validation of the SETTING-tool in four countries. BMJ Global Health, 6(1), e003221. http://dx.doi.org/10.1136/bmjgh-2020-003221.
Breitenstein, S., Gross, D., Fogg, L., Ridge, A., Garvey, C., Julion, W., & Tucker, S. (2012). The Chicago Parent Program: Comparing 1-year outcomes for African American and Latino parents of young children. Research in Nursing & Health, 35, 475-489. https://doi.org/10.1002/nur.21489.
Breitenstein, S., Gross, D., Garvey, C., Hill, C., Fogg, L., & Resnick, B. (2010). Implementation fidelity in community-based interventions. Research in Nursing & Health, 33, 164-173. https://doi.org/10.1002/nur.20373.
Burke, S. O., Harrison, M. B., Kauffmann, E., & Wong, C. (2001). Effects of stress-point intervention with families of repeatedly hospitalized children. Journal of Family Nursing, 7(2), 128-158. https://doi.org/10.1177/107484070100700202.
Carr, A. (2009). The effectiveness of family therapy and systemic interventions for child-focused problems. Journal of Family Therapy, 31, 3-45. https://doi.org/10.1111/j.1467-6427.2008.00451.x.
Chesla, C.A. (2010). Do family interventions improve health? Journal of Family Nursing, 16(4), 355-377. https://doi.org/10.1177/1074840710383145.
Choi, H., & Van Riper, M. (2020). mHealth family adaptation intervention for families of young children with Down syndrome: A feasibility study. Journal of Pediatric Nursing, 50, e69-e76. https://doi.org/10.1016/j.pedn.2019.03.010.
Daniel, L. C., Li, Y., Smith, K., Tarazi, R., Robinson, M. R., Patterson, C. A., Smith-Whitley, K., Stuart, M., & Barakat, L. P. (2015). Lessons learned from a randomized controlled trial of a family-based intervention to promote school functioning for school-age children with sickle cell disease. Journal of Pediatric Psychology, 40(10), 1085–1094. https://doi.org/10.1093/jpepsy/jsv063.
Doss, B. D., Feinberg, L. K., Rothman, K., Roddy, M. K., & Comer, J. S. (2017). Using technology to enhance and expand interventions for couples and families: Conceptual and methodological considerations. Journal of Family Psychology, 31(8), 983–993. https://doi.org/10.1037/fam0000349.
Dworkin, J., Hessel, H., Gliske, K., & Rudi, J. H. (2016). A comparison of three online recruitment strategies for engaging parents. Family Relations, 65(4), 550-561. https://doi.org/10.1111/fare.12206
Eccleston, C., Palermo, T., Fisher, E., & Law E. (2012). Psychological interventions for parents of children with chronic illness. Cochrane Review, 8, 1-139.
Eggenberger, S. K., & Sanders, M. (2016). A family nursing educational intervention supports nurses and families in an adult intensive care unit. Australian Critical Care, 29(4), 217-223. https://doi.org/10.1016/j.aucc.2016.09.002.
Eustace, R. (2013). A discussion of HIV/AIDS family interventions: Implications for family-focused nursing practice. Journal of Advanced Nursing, 69, 1660-1672. https://doi.org/10.1111/jan.12006.
Eustace, R., Gray, B., & Curry, D. (2015). Family nursing intervention: What do acute care nurses think? Research and Theory for Nursing Practice, 29(2), 125-142. https://doi.org/10.1891/1541-6577.29.2.125.
Fisher, L. & Weihs, K. (2000). Can addressing family relationships improve outcomes in chronic disease? Journal of Family Practice, 49, 561-566.
Golfenshtein, N., Srulovici, E., & Deatrick, J. A. (2016). Interventions for reducing parenting stress in families with pediatric conditions. Journal of Family Nursing, 22(4), 460–492. https://doi.org/10.1177/1074840716676083.
Gross, D., Breitenstein, S., Eisbach, S., Hoppe, E., & Harrison, J. (2014). Promoting mental health in early childhood programs: Serving low-income ethnic minority families. In M. Weist, N. Lever, C. Bradshaw, & J. Owens (Eds.), Handbook of school mental health, 2nd ed., p. 109-130. New York: Springer
Gross, D., Garvey, C., Julion, W., Fogg, L., Tucker, S., & Mokros, H. (2009). Efficacy of the Chicago Parent Program with low-income African American and Latino parents of young children. Prevention Science, 10, 54-65. https://doi.org/10.1007/s11121-008-0116-7.
Gross, D., Belcher, H. M., Budhathoki, C., Ofonedu, M. E., & Uveges, M. K. (2018). Does parent training format affect treatment engagement? A randomized study of families at social risk. Journal of Child and Family Studies, 27(5), 1579-1593. https://doi.org/10.1007/s10826-017-0984-1.
Kazak, A. (2005). Evidence-based interventions for survivors of childhood cancer and their families. Journal of Pediatric Psychology, 30(1), 29-39. https://doi.org/10.1093/jpepsy/jsi013.
Knafl, K., Havill, N., Leeman, J., Fleming, L., Crandell, J., & Sandelowski, M. (2016). The nature of family engagement in interventions for children with chronic conditions. Western Journal of Nursing Research, 39, 690-723. https://doi.org/10.1177/0193945916664700.
Lauver, D. R., Ward, S. E., Heidrich, S. M., Keller, M. L., Bowers, B. J., Brennan, P. F., Kirchhoff, K. T., & Wells, T. J. (2002). Patient-centered interventions. Research in Nursing & Health, 25(4), 246-255. https://doi.org/10.1002/nur.10044.
Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65(1), 207–224. https://doi.org/10.1111/fare.12185.
Martire, L. M., Lustig, A. P., Schulz, R., Miller, G. E., & Helgeson, V. S. (2004). Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology, 23(6), 599–611. https://doi.org/10.1037/0278-6133.23.6.599.
Martire, L., Schulz, R., Helgeson, V., Small, B., Saghafi, E. (2010). Review and meta-analysis of couple-oriented interventions for chronic illness. Annals of Behavioral Medicine, 40, 325-342. https://doi.org/10.1007/s12160-010-9216-2.
McBroom, L. A., & Enriquez, M. (2009). Review of family-centered interventions to enhance the health outcomes of children with type 1 diabetes. The Diabetes Educator, 35, 428-38. https://doi.org/10.1177/0145721709332814.
Moriarty, H., Winter, L., Robinson K. E., Piersol, C. V., Vause-Earland, T., Iacovone, D. B., Newhart, B., True, G., Fishman, D., Hodgson, N., & Gitlin, L. N. (2016). A randomized controlled trial to evaluate the veterans’ in-home program (VIP) for military veterans with traumatic brain injury and their families: Report on impact for family members. Physical Medicine and Rehabilitation, 8 (6), 495-509. https://doi.org/10.1016/j.pmrj.2015.10.008.
Mullins, L. L., Molzon, E. S., Suorsa, K. I., Tackett, A. P., Pai, A. L. H., & Chaney, J. M. (2015). Models of resilience: developing psychosocial interventions for parents of children with chronic health conditions. Family Relations, 64(1), 176–189. https://doi.org/10.1111/fare.12104.
Naef, R., Kaeppeli, B. M., Lanter, R., & Petry, H. (2020). Implementing family systems care through an educational intervention with nurses and midwives in obstetrics and gynecological care: A mixed-methods evaluation. Journal of Family Nursing, 26(2), 138-152. https://doi.org/10.1177/1074840720915598
Pusa, S., Isaksson, U., & Sundin, K. (2021). Evaluation of the implementation process of a family systems nursing approach in home health care: A mixed-methods study. Journal of Family Nursing, 27(3), 235-249. https://doi.org/10.1177/10748407211000050
Østergaard, B., Mahrer-Imhof, R., Wagner, L., Barington, T., Videbaek, L., & Lauridsen, J. (2018). Effect of family nursing therapeutic conversations on health-related quality of life, self-care and depression among outpatients with heart failure: A randomized multi-centre trial. Patient Education and Counseling, 101(8), 1385-1393. https://doi.org/10.1016/j.pec.2018.03.006.
Østergaard, B., Mahrer‐Imhof, R., Shamali, M., Nørgaard, B., Jeune, B., Pedersen, K. S., & Lauridsen, J. (2021). Effect of family nursing therapeutic conversations on patients with heart failure and their family members: Secondary outcomes of a randomised multicentre trial. Journal of Clinical Nursing, 30(5-6), 742-756. https://doi.org/10.1111/jocn.15603.
Pittson, H., & Wallace, L. (2011). Using intervention mapping to develop a family-based childhood weight management programme. Journal of Health Services Research & Policy, 16(1S), 2-7. https://doi.org/10.1258/jhsrp.2010.010076.
Robb, S. L., Haase, J. E., Perkins, S. M., Haut, P. R., Henley, A. K., Knafl, K. A., & Tong, Y. (2016). Pilot randomized trial of active music engagement intervention parent delivery for young children with cancer. Journal of Pediatric Psychology, 42(2), 208-219. https://doi.org/10.1093/jpepsy/jsw050.
Robinson, C.A., & Wright, L.M. (1995). Family nursing interventions: What families say makes a difference. Journal of Family Nursing, 1(3), 327-345. https://doi.org/10.1177/107484079500100306.
Savage, E., Farrell, D., McManus, V., & Grey, M. (2010). The science of intervention development for type 1 diabetes in childhood. Journal of Advanced Nursing, 66, 2604-2619. https://doi.org/10.1111/j.1365-2648.2010.05423.x.
Sawin, K.J., Weiss, M.E., Johnson, N., Gralton, K., Malin, S., Klingbeil, C., Lerret, S.M., Thompson, J.J., Zimmanck, K., Kaul, M., & Schiffman, R.F. (2017). Development of a self‐management theory‐guided discharge intervention for parents of hospitalized children. Journal of Nursing Scholarship, 49(2), 202-213. https://doi.org/10.1111/jnu.12284.
Schulman-Green, D., & Jeon, S. (2017). Managing Cancer Care: A psycho-educational intervention to improve knowledge of care options and cancer self-management. Psycho-Oncology, 26(2), 173-181.https://doi.org/10.1002/pon.4013.
Swallow, V., Knafl, K., Santacroce, S., Hall, A., Smith T., Campbell, M., & Webb, N. (2012). The online parent information and support project, meeting parents’ information and support needs for home-based management of childhood chronic kidney disease: Research protocol. Journal of Advanced Nursing, 68(9), 2095-2102. https://doi.org/10.1111/j.1365-2648.2011.05908.x.
Swallow, V., Carolan, I., Smith, T., Webb, N. J., Knafl, K., Santacroce, S., Campbell, M., Harper-Jones, M., Hanif, N., & Hall, A. (2016). A novel Interactive Health Communication Application (IHCA) for parents of children with long-term conditions: Development, implementation and feasibility assessment. Informatics for Health and Social Care, 41(1), 20-46. https://doi.org/10.3109/17538157.2014.948174.
Van Allen, J., Borner, K. B., Gayes, L. A., & Steele, R. G. (2015). Weighing physical activity: The impact of a family-based group lifestyle intervention for pediatric obesity on participants’ physical activity. Journal of Pediatric Psychology, 40(2), 193–202. https://doi.org/10.1093/jpepsy/jsu077.
Wacharasin, C., Phaktoop, M., & Sananreangsak, S. (2015). Examining the usefulness of a family empowerment program guided by the Illness Beliefs Model for families caring for a child with thalassemia. Journal of Family Nursing, 21(2), 295–321. https://doi.org/10.1177/1074840715585000.
West, C. H., Bell, J. M., Woodgate, R. L., & Moules, N. J. (2015). Waiting to return to normal: An exploration of family systems intervention in childhood cancer. Journal of Family Nursing, 21(2), 261-294.https://doi.org/10.1177/1074840715576795.
Winter, L., Moriarty, H., Robinson K. E., Piersol, C. V., Vause-Earland, T., Iacovone, D. B., Holbert, L., Newhart, B., Fishman, D., Hodgson, N., & Gitlin, L. N. (2016). Efficacy and acceptability of a home-based, family-inclusive intervention for veterans with TBI: A randomized controlled trial. Brain Injury, 30(4), 373-387. https://doi.org/10.3109/02699052.2016.1144080.
Wright, L. M., & Leahey, M. (2013). Nurses and families: A guide to family assessment and intervention (6th Ed.). Philadelphia, PA: F.A. Davis
Yi-Frazier, J. P., Fladeboe, K., Klein, V., Eaton, L., Wharton, C., McCauley, E., & Rosenberg, A. R. (2017). Promoting Resilience in Stress Management for Parents (PRISM-P): An intervention for caregivers of youth with serious illness. Families, Systems, & Health, 35(3), 341–351. https://doi.org/10.1037/fsh0000281.