Sivia Bar-Noy, RN, PhD, is an Associate Professor and Head of the Graduate Program, Nursing Department, Tel Aviv University, Israel. Her teaching and program of research focuses on the social, psychological, ethical, and legal aspects of genetics. She is currently involved in a study about the impact of genetics on families which examines the parental experience of having a child with a genetic condition. Another study focuses on the question: “to whom does genetic information belong?” Genetic information is of importance to the individual who is tested as well as to the individual’s family. In a large-scale study, attitudes, opinions, and behavioral intentions of genetic counselees regarding the disclosure of their genetic information to their families were examined. Recently a qualitative study was conducted in which onco-genetic counselors and nurses were interviewed regarding their experience with family involvement in decision making related to cancer genetic tests. For more information, contact IFNA member, Sivia Bar-Noy.
Twitter account: @SiviaBarnoy