Bibliography developed by Dr. Kathleen Knafl, Professor, School of Nursing, University of North Carolina at Chapel Hill.
Download the full family research bibliography
Updated October 2023
Abboud, S., Flores, D. D., Bond, K., Chebli, P., Brawner, B. M., & Sommers, M. S. (2022). Family sex communication among Arab American young adults: A mixed-methods study. Journal of Family Nursing, 28(2), 115-128. https://doi.org/10.1177/10748407211053931
Ahlberg, M., Persson, C., Berterö, C., & Ågren, S. (2021). Family health conversations versus support group conversations when a family member has been critically ill: A mixed methods study. Families Systems & Health, 39(2), 293-305. https://doi.org/10.1037/fsh0000607
Alderfer, M. A., Cnaan, A., Annunziato, R. A., & Kazak, A. E. (2005). Patterns of posttraumatic stress symptoms in parents of childhood cancer survivors. Journal of Family Psychology, 19(3), 430–440. https://doi.org/10.1037/0893-3200.19.3.430.
Al Ghriwati, N., Winter, M. A., & Everhart, R. S. (2016). Examining profiles of family functioning in pediatric asthma: Longitudinal associations with child adjustment and asthma severity. Journal of Pediatric Psychology, 42(4), 434-444. https://doi.org/10.1093/jpepsy/jsw089.
Al Ghriwati, N., Winter, M. A., Everhart, R. S., & Fiese, B. H. (2017). Family functioning and child asthma severity: A bio-behavioral approach. Families, Systems, & Health, 35(4), 439–449. https://doi.org/10.1037/fsh0000264.
Anderson, J. G., Hundt, E., Dean, M., Keim-Malpass, J., & Lopez, R. P. (2017). “The Church of Online Support”: Examining the use of blogs among family caregivers of persons with dementia. Journal of Family Nursing, 23(1), 34–54. https://doi.org/10.1177/1074840716681289.
Asiedu, G. B., Eustace, R. W., Eton, D. T., & Radecki Breitkopf, C. (2014). Coping with colorectal cancer: a qualitative exploration with patients and their family members. Family Practice, 31(5), 598-606. https://doi.org/10.1093/fampra/cmu040.
Augustine, J. M., Prickett, K. C., & Kimbro, R. T. (2017). Health-related parenting among U.S. families and young children’s physical health. Journal of Marriage and Family, 79(3), 816–832. https://doi.org/10.1111/jomf.12363.
Bai, S., & Repetti, R. (2015). Short-term resilience processes in the family. Family Relations, 64(1), 108-119. https://doi.org/10.1111/fare.12101.
Barakat, L. P., Li, Y., Hobbie, W., Ogle, S., Hardie, T., Volpe, E. M., Szabo, M. M., Reilly, M., & Deatrick, J. (2015). Health-related quality of life of adolescents and young adult survivors of childhood brain tumors. Psycho-Oncology. 24, 804-811. https://doi.org/10.1002/pon.3649.
Barakat, L. P., Patterson, C. A., Weinberger, B. S., Simon, K., Gonzalez, E. R., & Dampier, C. (2007). A prospective study of the role of coping and family functioning in health outcomes for adolescents with sickle cell disease. Journal of Pediatric Hematology/Oncology, 29(11), 752-760. https://doi.org/10.1097/MPH.0b013e318157fdac.
Beardslee, W. R., Gladstone, T. R., Wright, E. J., & Cooper, A. B. (2003). A family-based approach to the prevention of depressive symptoms in children at risk: evidence of parental and child change. Pediatrics, 112(2), e119-e131. https://doi.org/10.1542/peds.112.2.e119.
Birnie, K. A., Chambers, C. T., Chorney, J., Fernandez, C. V., & McGrath, P. J. (2016). A multi-informant multi-method investigation of family functioning and parent–child coping during children’s acute pain. Journal of Pediatric Psychology, 42(1). https://doi.org/10.1093/jpepsy/jsw045.
Butcher, J. L., & Nasr, S. Z. (2015). Direct observation of respiratory treatments in cystic fibrosis: Parent–child interactions relate to medical regimen adherence. Journal of Pediatric Psychology, 40(1), 8–17. https://doi.org/10.1093/jpepsy/jsu074.
Butler, F., & Zakari, N. (2005). Grandparents parenting grandchildren: Assessing health parental stress, and social supports. Journal of Gerontological Nursing, 31, 43-54. https://doi.org/10.3928/0098-9134-20050301-09.
Caputo, J., Pavalko, E. K., & Hardy, M. A. (2016). The long-term effects of caregiving on women’s health and mortality. Journal of Marriage and Family, 78(5), 1382–1398. https://doi.org/10.1111/jomf.12332.
Chamay Weber, C., Camparini, N., Lanza, L., & Narring, F. (2016). Parents’ integration in the treatment of adolescents with obesity: A qualitative study. Families, Systems, & Health, 34(4), 396–403. https://doi.org/10.1037/fsh0000219.
Conger, R. D., Brainerd, D. W., Birch, L. L., Friedberg, P. J., & Navarro, L. A. (1986). Assessing the quality of family observations: A comparative analysis. Journal of Marriage and the Family, 48(2), 361-373. https://doi.org/10.2307/352403.
Coutinho, M. T., Kopel, S. J., Williams, B., Dansereau, K., & Koinis-Mitchell, D. (2016). Urban caregiver empowerment: Caregiver nativity, child-asthma symptoms, and emergency-department use. Families, Systems, & Health, 34(3), 229–239. https://doi.org/10.1037/fsh0000206.
Danford, C. A. & Martyn, K. K. (2013). Exploring eating and activity behaviors with parent-child dyads using event history calendars. Journal of Family Nursing, 19(3), 375-398. https://doi.org/10.1177/1074840713491831.
David, J. G., Lo, M. S., & Langer, D. A. (2018). Adolescent and parent perspectives on medical decision-making for chronic illness. Families, Systems, & Health, 36(2), 248–251. https://doi.org/10.1037/fsh0000297.
Deatrick, J. A., Hobbie, W., Ogle, S., Fisher, M. J., Barakat, L., Hardie, T., Reilly, M., Li, Y., & Ginsberg, J. P. (2014). Competence in caregivers of adolescent and young adult childhood brain tumor survivors. Health Psychology, 33(10), 1103–1112. https://doi.org/10.1037/a0033756.
Deatrick, J. A., Barakat, L. P., Knafl, G. J., Hobbie, W., Ogle, S., Ginsberg, J. P., Fisher, M. J., Hardie, T., Reilly, M., Broden, E., Toth, J., SanGiacomo, N., & Knafl, K. A. (2018). Patterns of family management for adolescent and young adult brain tumor survivors. Journal of Family Psychology, 32(3), 321–332. https://doi.org/10.1037/fam0000352.
Deatrick, J. A., Knafl, G. J., Knafl, K., Hardie, T. L., Bressler, S., Hobbie, W., Bratton, K., Dominguez, M., Guzman, C. D., Rees Papinsick, A., & Rees, A. L. (2021). Mothers’ and fathers’ views of family management and health-related quality of life for young adult survivors of childhood brain tumors. Journal of Psychosocial Oncology, 39(5), 629-645. https://doi.org/10.1080/07347332.2020.1844845.
de Ceuninck van Capelle, A., Visser, L. H., & Vosman, F. (2016). Multiple sclerosis (MS) in the life cycle of the family: An interpretative phenomenological analysis of the perspective of persons with recently diagnosed MS. Families, Systems, & Health, 34(4), 435–440. https://doi.org/10.1037/fsh0000216.
Eddy, B. P., & Fife, S. T. (2021). Active husband involvement during pregnancy: A grounded theory. Family Relations, 70(4), 1222-1237. https://doi.org/10.1111/fare.12486
Ehrlich, K. B., Miller, G. E., & Chen, E. (2015). Family functioning, eosinophil activity, and symptoms in children with asthma. Journal of Pediatric Psychology, 40(8), 781–789. https://doi.org/10.1093/jpepsy/jsv045.
Ellis, K. R., Young, T. L., Carthron, D., Simms, M., McFarlin, S., Davis, K. L., Dave, G., Corbie-Smith, G., & Cené, C. (2019). Perceptions of rural African American adults about the role of family in understanding and addressing risk factors for cardiovascular disease. American Journal of Health Promotion, 33(5), 708-717. https://doi.org/10.1177/0890117118799574.
Fleming, L., Knafl, K., & Van Riper, M. (2017). How the child’s gender matters for families having a child with congenital adrenal hyperplasia. Journal of Family Nursing, 23(4), 516–533. https://doi.org/10.1177/1074840717735499.
Ford-Gilboe, M. (1997). Family strengths, motivation and resources as predictors of health promotion behavior in single-parent and two-parent families. Research in Nursing and Health, 20, 205-217. https://doi.org/10.1002/(SICI)1098-240X(199706)20:3%3C205::AID-NUR4%3E3.0.CO;2-M.
Freed, R. D., Tompson, M. C., Wang, C. H., Otto, M. W., Hirshfeld-Becker, D. R., Nierenberg, A. A., & Henin, A. (2015). Family functioning in the context of parental bipolar disorder: associations with offspring age, sex, and psychopathology. Journal of Family Psychology, 29(1), 108–18.
Galimidi, N., & Shamai, M. (2022). Interactions between mental illness recovery processes in the family. Family Relations, 71(1), 408-425. https://doi.org/10.1111/fare.l2594
Gallo, A., Knafl, K., & Angst, D. (2009). Information management in families who have a child with a genetic condition. Journal of Pediatric Nursing, 24, 194-204. https://doi.org/10.1016/j.pedn.2008.07.010.
Gallo, A., Patil, C., Knafl, K., Angst, D., Rondelli, D., & Saraf, S. (2019). The experience of adults with sickle cell disease and their HLA-matched adult sibling donors after allogeneic hematopoietic stem cell transplant. Journal of Advanced Nursing, 75, 2943-2951. https://doi.org/10.1111/jan.14152.
Gibson-Young, L., Turner-Henson, A., Gerald, L. B., Vance, D. E., & Lozano, D. (2014). The relationships among family management behaviors and asthma morbidity in maternal caregivers of children with asthma. Journal of Family Nursing, 20(4), 442-461. https://doi.org/10.1177/1074840714552845.
Glackin, M., & Higgins, A. (2008). The grief experience of same-sex couple within an Irish context: Tacit acknowledgement. International Journal of Palliative Nursing, 14, 297-302. https://doi.org/10.12968/ijpn.2008.14.6.30025.
Gouin, J. P., Da Estrela, C., Desmarais, K., & Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving stress. Family Relations, 65(1), 191-206. https://doi.org/10.1111/fare.12183.
Griffin, D., & Gonzalez, R. (2003). Models of dyadic social interaction. Philosophical Transactions of the Royal Society of London. Series B: Biological Sciences, 358(1431), 573-581. https://doi.org/10.1098/rstb.2002.1263.
Gultekin, L., & Brush, B. L. (2017). In their own words: Exploring family pathways to housing instability. Journal of Family Nursing, 23(1), 90-115. https://doi.org/10.1177/1074840716678046.
Gutiérrez-Colina, A. M., Lee, J. L., VanDellen, M., Mertens, A., & Marchak, J. G. (2017). Family functioning and depressive symptoms in adolescent and young adult cancer survivors and their families: A dyadic analytic approach. Journal of Pediatric Psychology, 42(1), 19-27. https://doi.org/10.1093/jpepsy/jsw041.
Harden, J., Northouse, L., & Mood, D. (2006). Qualitative analysis of couples’ experience with prostate cancer by age cohort. Cancer Nursing, 29, 367-377.
Haskett, M. E., Hall, J. K., Finster, H. P., Owens, C., & Buccelli, A. R. (2022). “It brought my family more together”: Mixed‐methods study of low‐income U.S. mothers during the pandemic. Family Relations, 71(3), 849-864. https://doi.org/10.1111/fare.12684
Hellqvist, C., Dizdar, N., Hagell, P., Berterö, C., & Sund‐Levander, M. (2018). Improving self‐management for persons with Parkinson’s disease through education focusing on management of daily life: Patients’ and relatives’ experience of the Swedish National Parkinson School. Journal of Clinical Nursing, 27(19-20), 3719-3728. https://doi.org/10.1111/jocn.14522.
Hiefner, A. R. (2021). Dyadic coping and couple resilience after miscarriage. Family Relations, 70(1), 59-76. https://doi.org/10.1111/fare.12475
Hilliard, M. E., Holmes, C. S., Chen, R., Maher, K., Robinson, E., & Streisand, R. (2013). Disentangling the roles of parental monitoring and family conflict in adolescents’ management of type 1 diabetes. Health Psychology, 32(4), 388–396. https://doi.org/10.1037/a0027811.
Horner, S. (2015). An exploration of parent-child dyadic asthma management influences on quality of life. Issues in Comprehensive Pediatric Nursing, 38, 85-104. https://doi.org/10.3109/01460862.2015.1017668.
Jhang, J. (2018). Scaffolding in family relationships: A grounded theory of coming out to family. Family Relations, 67(1), 161-175. https://doi.org/10.1111/fare.12302
Kamibeppu, K., Murayama, S., Ozono, S., Sakamoto, N., Iwai, T., Asami, K., Maeda, N., Inada, H., Kakee, N., Okamura, J., & Horibe, K. (2015). Predictors of posttraumatic stress symptoms among adolescent and young adult survivors of childhood cancer: importance of monitoring survivors’ experiences of family functioning. Journal of Family Nursing, 21(4), 529-550. https://doi.org/10.1177/1074840715606247.
Kavanaugh, K., Savage, T., Kilpatrick, S., Kimura, R., & Hershberger, P. (2005). Life support decisions for extremely premature infants: Report of a pilot study. Journal of Pediatric Nursing, 20, 347-359. https://doi.org/10.1016/j.pedn.2005.03.006.
Klitzman, P. H., Carmody, J. K., Belkin, M. H., & Janicke, D. M. (2018). Behavioral and pharmacological adherence in pediatric sickle cell disease: parent–child agreement and family factors associated with adherence. Journal of Pediatric Psychology, 43(1), 31–39. https://doi.org/10.1093/jpepsy/jsx077.
Knafl, K., Leeman, J., Havill, N. L., Crandell, J. L., & Sandelowski, M. (2015). The contribution of parent and family variables to the well-being of youth with arthritis. Journal of Family Nursing, 21(4), 579–616. https://doi.org/10.1177/1074840715601475.
Knafl, K., Knafl, G., Gallo, A., & Angst, D. (2007). Parents’ perceptions of functioning in families having a child with a genetic condition. Journal of Genetic Counseling, 16, 481-492. https://doi.org/10.1007/s10897-006-9084-x.
Knafl, K., Deatrick, J, Knafl, G., Gallo, A. Grey, M., Dixon, J. (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28, 523-535. https://doi.org/10.1016/j.pedn.2013.03.006.
Landers, S. E., Friedrich, E. A., Jawad, A. F., & Miller, V. A. (2016). Examining the interaction of parental involvement and parenting style in predicting adherence in youth with type 1 diabetes. Families, Systems, & Health, 34(1), 41–50. https://doi.org/10.1037/fsh0000183.
Lansing, A. H., Crochiere, R., Cueto, C., Wiebe, D. J., & Berg, C. A. (2017). Mother, father, and adolescent self-control and adherence in adolescents with Type 1 diabetes. Journal of Family Psychology, 31(4), 495–503. https://doi.org/10.1037/fam0000292.
Larsen, H. B., Heilmann, C., Johansen, C., & Adamsen, L. (2011). An analysis of parental roles during haematopoietic stem cell transplantation of their offspring: A qualitative and participant observational study. Journal of Advanced Nursing, 67, 1458–1467. https://doi.org/10.1111/j.1365-2648.2010.05587.x.
Lennon, J. M., Murray, C. B., Bechtel, C. F., & Holmbeck, G. N. (2015). Resilience and disruption in observed family interactions in youth with and without spina bifida: An eight-year, five-wave longitudinal study. Journal of Pediatric Psychology, 40(9), 943–955. https://doi.org/10.1093/jpepsy/jsv033.
Lewis, S., Kagan, C., & Heaton, P. (2000). Dual earner parents with disabled children. Journal of Family Issues, 21, 10-31-1060. https://doi.org/10.1177/019251300021008005.
Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57(3), P195-P204. https://doi.org/10.1093/geronb/57.3.P195.
Mandara, J., & Murray, C. B. (2002). Development of an empirical typology of African American family functioning. Journal of Family Psychology, 16(3), 318–337. https://doi.org/10.1037/0893-3200.16.3.318.
Marsack‐Topolewski, C. N., Perry, T. E., & Chan, K. T. (2021). “I’m Glad She Chose Me as Her Parent”: Rewards of caregiving for adults with autism. Family Relations, 70(5), 1465-1476. https://doi.org/10.1111/fare.12515
Martin, S. C. (2016). Relational issues within couples coping with Parkinson’s disease: Implications and ideas for family-focused care. Journal of Family Nursing, 22(2), 224-251. https://doi.org/10.1177/1074840716640605
McKinley, C. E., & Lilly, J. (2022). “It’s in the family circle”: Communication promoting Indigenous family resilience. Family Relations, 71(1), 108-129. https://doi.org/10.1111/fare.l2600
Meeker, M. A. (2004). Family surrogate decision making at the end of life: Seeing them through with care and respect.Qualitative Health Research, 14(2), 204-225. https://doi.org/10.1177/1049732303260501.
Mendes, T. P., Crespo, C. A., & Austin, J. K. (2017). Family cohesion, stigma, and quality of life in dyads of children with epilepsy and their parents. Journal of Pediatric Psychology, 42(6). https://doi.org/10.1093/jpepsy/jsw105.
Mills-Koonce, W. R., Propper, C. B., Gariepy, J. L., Blair, C., Garrett-Peters, P., & Cox, M. J. (2007). Bidirectional genetic and environmental influences on mother and child behavior: The family system as the unit of analyses. Development and Psychopathology, 19, 1073-1087. https://doi.org/10.1017/S0954579407000545.
Mizock, L., Salmonsen, J., & Smith, S. (2022). Family challenges experienced by women with serious mental illness. Family relations, 71(1), 426-438. https://doi.org/10.1111/fare.l2566
Mooney-Doyle, K., & Lindley, L. C. (2020). Family and child characteristics associated with caregiver challenges for medically complex children. Family & Community Health, 43(1), 74-81. https://doi.org/10.1097/FCH.0000000000000245.
Novak, J. R., Anderson, J. R., Johnson, M. D., Walker, A., Wilcox, A., Lewis, V. L., & Robbins, D. C. (2017). Associations between economic pressure and diabetes efficacy in couples with type 2 diabetes. Family Relations, 66(2), 273–286. https://doi.org/10.1111/fare.12246.
Östlund, U., Bäckström, B., Saveman, B.-I., Lindh, V., & Sundin, K. (2016). A family systems nursing approach for families following a stroke. Journal of Family Nursing, 22(2), 148–171. https://doi.org/10.1177/1074840716642790.
Otto, A. K., Laurenceau, J.-P., Siegel, S. D., & Belcher, A. J. (2015). Capitalizing on everyday positive events uniquely predicts daily intimacy and well-being in couples coping with breast cancer. Journal of Family Psychology, 29(1), 69–79. https://doi.org/10.1037/fam0000042.
Ozono, S., Saeki, T., Inoue, S., Mantani, T., Okamura, H., & Yamawaki, S. (2005). Family functioning and psychological distress among Japanese breast cancer patients and families. Supportive Care in Cancer, 13(12), 1044-1050. https://doi.org/10.1007/s00520-005-0816-5.
Park, E., Miller, K., & Knafl, K. (2019). Understanding familial response to parental advanced cancer using the family management style framework. Journal of Psychosocial Oncology, 37, 758-776. https://doi.org/10.1080/07347332.2019.1614132.
Prickett, K. C., & Augustine, J. M. (2016). Maternal education and investments in children’s health. Journal of Marriage and Family, 78(1), 7–25. https://doi.org/10.1111/jomf.12253.
Pruchno, R., Wilson-Genderson, M., & Cartwright, F. P. (2009). Depressive symptoms and marital satisfaction in the context of chronic disease: A longitudinal dyadic analysis. Journal of Family Psychology, 23(4), 573–584. https://doi.org/10.1037/a0015878.
Psihogios, A. M., Daniel, L. C., Tarazi, R., Smith-Whitley, K., Patterson, C. A., & Barakat, L. P. (2017). Family functioning, medical self-management, and health outcomes among school-aged children with sickle cell disease: A mediation model. Journal of Pediatric Psychology, 43(4), 423-433. https://doi.org/10.1093/jpepsy/jsx120.
Queen, T. L., Butner, J., Wiebe, D. J., & Berg, C. A. (2016). A micro-developmental view of parental well-being in families coping with chronic illness. Journal of Family Psychology, 30(7), 843–853. https://doi.org/10.1037/fam0000201.
Rauscher, E. A., & Dean, M. (2017). “Take your time, then follow your heart:” Previvors’ advice for communicating about family planning after testing positive for a BRCA genetic variant. Families, Systems, & Health, 35(4), 486–497. https://doi.org/10.1037/fsh0000312.
Rehm, R., & Bradley, J. (2005). Normalization in families raising a child who is medically fragile/technology- dependent and developmentally delayed. Qualitative Health Research, 15, 807-820. https://doi.org/10.1177/1049732305276754.
Robinson, C., Pesut, B., & Bottorff, J. (2012). Supporting rural family palliative caregivers. Journal of Family Nursing, 18, 467-490. https://doi.org/10.1177/1074840712462065.
Russell, L. T., Beckmeyer, J. J., & Su-Russell, C. (2018). Family-centered care and positive developmental outcomes for youth with special health care needs: Variations across family structures. Journal of Family Nursing, 24(1), 29-59. https://doi.org/10.1177/1074840717745520.
Rybak, T. M., Ali, J. S., Berlin, K. S., Klages, K. L., Banks, G. G., & Kamody, R. C. (2016). Patterns of family functioning and diabetes-specific conflict in relation to glycemic control and health-related quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 42(1), 40-51. https://doi.org/10.1093/jpepsy/jsw071.
San Giacomo, N., Toth, J. Hobbie, W., Broden, E., Ver Hoeve, E., Knafl, K., Barakat, L., Ogle, S., & Deatrick, J. (2019). Challenges of family management for caregivers of adolescent and young adult survivors of childhood brain tumors. Journal of Pediatric Oncology Nursing, 36, 402-412. https://doi.org/10.1177/1043454219844229.
Santos, S., Crespo, C., Canavarro, M. C., Alderfer, M. A., & Kazak, A. E. (2016). Family rituals, financial burden, and mothers’ adjustment in pediatric cancer. Journal of Family Psychology, 30(8), 1008–1013. https://doi.org/10.1037/fam0000246.
Santos, S., Crespo, C., Canavarro, M. C., & Kazak, A. E. (2015). Family rituals and quality of life in children with cancer and their parents: The role of family cohesion and hope. Journal of Pediatric Psychology, 40(7), 664–671. https://doi.org/10.1093/jpepsy/jsv013.
Sato, N., Araki, A., Ito, R., & Ishigaki, K. (2015). Exploring the beliefs of Japanese mothers caring for a child with disabilities. Journal of Family Nursing, 21(2), 232–260. https://doi.org/10.1177/1074840715586551.
Saunders, B. S., Tilford, J. M., Fussell, J. J., Schulz, E. G., Casey, P. H., & Kuo, D. Z. (2015). Financial and employment impact of intellectual disability on families of children with autism. Families, Systems, & Health, 33(1), 36–45. https://doi.org/10.1037/fsh0000102.
Segaric, C., & Hall, W. (2015). Progressively engaging: Constructing nurse, patient, and family relationship in acute care settings. Journal of Family Nursing, 21, 35-56. https://doi.org/10.1177/1074840714564787.
Shamali, M., Konradsen, H., Stas, L., & Østergaard, B. (2019). Dyadic effects of perceived social support on family health and family functioning in patients with heart failure and their nearest relatives: Using the Actor–Partner Interdependence Mediation Model. PLoS One, 14(6), e0217970. https://doi.org/10.1371/journal.pone.0217970.
Shamali, M., Konradsen, H., Svavarsdottir, E. K., Shahriari, M., Ketilsdottir, A., & Østergaard, B. (2021). Factors associated with family functioning in patients with heart failure and their family members: An international cross‐sectional study. Journal of Advanced Nursing, 77(7), 3034-3045. https://doi.org/10.1111/jan.14810.
Skipper, A. D., Marks, L. D., Moore, T. J., & Dollahite, D. C. (2021). Black marriages matter: Wisdom and advice from happily married Black couples. Family Relations, 70(5), 1369-1383. https://doi.org/10.nn/fare.12565
Silva, N., Carona, C., Crespo, C., & Canavarro, M. C. (2015). Caregiving burden and uplifts: a contradiction or a protective partnership for the quality of life of parents and their children with asthma? Journal of Family Psychology, 29(2), 151–61.
Stubblefield, C., & Murray, R. L. (2000). Making the transition: Pediatric lung transplantation. Journal of Pediatric Healthcare, 14(6), 280-287. https://doi.org/10.1067/mph.2000.109186.
Timmermans, S., & Freidin, B. (2007). Caretaking as articulation work: The effects of taking up responsibility for a child with asthma on labor force participation. Social Science & Medicine, 65, 1351-1363. https://doi.org/10.1016/j.socscimed.2007.05.027.
Van Riper, M., Knafl, G. J., Roscigno, C., & Knafl, K. A. (2018). Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability? American Journal of Medical Genetics, Part A, 176(1), 82–91. https://doi.org/10.1002/ajmg.a.38508.
Weine, S., Muzurovic, N., Kulauzovic, Y., Besic, S., Lezic, A., Mujagic, A., Muzurovic, J., Spahovic, D., Feetham, S., Ware, N., Knafl, K., & Pavkovic, I. (2004). Family consequences of refugee trauma. Family Process, 43, 147-160. https://doi.org/10.1111/j.1545-5300.2004.04302002.x.
Weine, S., Knafl, K., Feetham, S., Kulauzovic, Y., Klebic, A., Sclove, S., Besic, S. Mujagic, A., Muzurovic, J., & Spahovic, D. (2005). A mixed-method study of refugee families engaging in multiple-family groups. Family Relations, 54, 558-568. https://doi.org/10.1111/j.1741-3729.2005.00340.x.
West, C. H., Bell, J. M., Woodgate, R. L., & Moules, N. J. (2015). Waiting to return to normal: An exploration of family systems intervention in childhood cancer. Journal of Family Nursing, 21(2), 261–294. https://doi.org/10.1177/1074840715576795.
Williams, B., Mukhopadhyay, S., Dowell, J., & Coyle, J. (2007). From child to adult: An exploration of shifting family roles and responsibilities in managing physiotherapy for cystic fibrosis. Social Science & Medicine, 65, 2135–2146. https://doi.org/10.1016/j.socscimed.2007.07.020.
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