Bibliography developed by Dr. Kathleen Knafl, Professor, School of Nursing, University of North Carolina at Chapel Hill, USA
Download the full family research bibliography
Updated October 2023
Alderfer, M. A., Fiese, B. H., Gold, J. I., Cutuli. J. J., Holmbeck, G. N., Goldbeck, L., Chambers, C. T., Abad, M., Spetter, D., & Patterson, J. (2008). Evidence-based assessment in pediatric psychology: Family measures. Journal of Pediatric Psychology, 33(9), 1046-1061. https://doi.org/10.1093/jpepsy/jsm083.
DeVellis, R. (2012). Scale development: Theory and applications (3rd ed.). Sage: Thousand Oaks.
Ganong, L. (2003). Selecting family measurements. Journal of Family Nursing, 9, 184-206. https://doi.org/10.1177/1074840703009002005.
Gisladottir, M., & Svavarsdottir, E. K. (2016). Development and psychometric testing of the Iceland–Family Illness Beliefs Questionnaire. Journal of Family Nursing, 22(3), 321–338. https://doi.org/10.1177/1074840716661593.
Gordon, R. A. (2015). Measuring constructs in family science: How can item response theory improve precision and validity? Journal of Marriage and Family, 77(1), 147–176. https://doi.org/10.1111/jomf.12157.
Hamilton, E., & Carr, A. (2016). Systematic review of self-report family assessment measures. Family Process, 55(1), 16-30. https://doi.org/10.1111/famp.12200.
Kiriake, A., & Moriyama, M. (2016). Development and testing of the Partnership Scale for Primary Family Caregivers Caring for Patients with Dementia. Journal of Family Nursing, 22(3), 339–367. https://doi.org/10.1177/1074840716656450.
Knafl, K., Deatrick, J., Gallo, A., Dixon, J., Grey, M., Knafl, G., & O’Malley, J. (2011). Assessment of the psychometric properties of the Family Management Measure. Journal of Pediatric Psychology, 36, 494-505. https://doi.org/10.1093/jpepsy/jsp034.
Knafl, K, Deatrick, J., Gallo, A., Holcombe, G., Bakitas, M., Dixon, J., & Grey M. (2007). The analysis and interpretation of cognitive interview for instrument development. Research in Nursing & Health, 30, 224-234. https://doi.org/10.1002/nur.20195.
Knafl, K., & Deatrick, J. (2006). Family management style and the challenge of moving from conceptualization to measurement. Journal of Pediatric Oncology Nursing, 23, 12-18. https://doi.org/10.1177/1043454205283585.
Leibach, G. G., & Everhart, R. S. (2017). Family Assessment Device: Real-world validity in urban families of children with asthma. Journal of Family Psychology, 31(5), 642–647. https://doi.org/10.1037/fam0000313.
Lou, H., Birthe, D., Pedersen, D., & Hedegaard, M. (2009). Questions never asked. Positive family outcomes of extremely premature childbirth. Quality of Life Research, 18, 567-573. https://doi.org/10.1007/s11136-009-9480-4.
Neabel, B., Fothergill-Bourbonnais, F., & Dunning J. (2000). Family assessment tools: A review of the literature. Heart and Lung, 29 (3), 196-209. https://doi.org/10.1067/mhl.2000.106938.
Østergaard, B., Mahrer‐Imhof, R., Lauridsen, J., & Wagner, L. (2017). Validity and reliability of the Danish version of the 9‐item European Heart Failure Self‐care Behavior Scale. Scandinavian Journal of Caring Sciences, 31(2), 405-412. https://doi.org/10.1111/scs.12342.
Østergaard, B., Pedersen, K. S., Lauridsen, J., Nørgaard, B., & Jeune, B. (2018). Translation and field testing of the family functioning, family health and social support questionnaire in Danish outpatients with heart failure. Scandinavian Journal of Caring Sciences, 32(2), 554-566. https://doi.org/10.1111/scs.12479.
Sawin, K. J. (2016). Measurement in family nursing. Journal of Family Nursing, 22(3), 287–297. https://doi.org/10.1177/1074840716656038.
Sawin, K. J., Heffelfinger, A., Cashin, S. E., & Brei, T. J. (2018). The development of the Adolescent/Young Adult Self-Management and Independence Scale II: Psychometric data. Journal of Pediatric Rehabilitation Medicine, 11(4), 311-322. https://doi.org10.3233/PRM-170479.
Song, M., Deatrick, J. A., Feetham, S. L., & Levin, A. (2013). A Review of Diabetes Mellitus–Specific Family Assessment Instruments. Western Journal of Nursing Research, 35(4), 405-433. https://doi.org/10.1177/0193945911413909.
Van Riper, M., Knafl, G. J., Barbieri-Figueiredo, M., Caples, M., Choi, H., de Graaf, G., Duarte, E. D., Honda, J., Marta, E., Phetrasuwan, S., Alfieri, S., Angelo, M., Deoisres, W., Fleming, L., Dos Santos, A. S., Rocha da Silva, M. J., Skelton, B., van der Veek, S., & Knafl, K. A. (2021). Measurement of family management in families of individuals with Down syndrome: A cross-cultural investigation. Journal of Family Nursing, 27(1), 8–22. https://doi.org/10.1177/1074840720975167.
