Research Resources

Resources for Research in Family Nursing

These resources have been submitted by IFNA members; for more information or to report a problem with a link, please contact the person whose name is listed under the resource. To suggest the addition of additional resources related to family nursing research on this page, please contact the chair of the Research Committee, Ann Garwick at garwi001@umn.edu.

IFNA Guidelines for Posting of Resources [LINK]

2011 Key Accomplishments

• Research Committee slide presentation presented at IFNA by S. Feetham. Attendees were invited to join IFNA and Research Committee at the conference.
• Developed and distributed survey of Research Committee members’ interest and resources that members were interested in sharing on the IFNA web site. There were 54 responses to the survey.
• Collaborated with the IFNA Communications Committee to develop the Research Resources section of the IFNA web site. Completed pilot test of member profiles.
• Research committee represented by Chair on the IFNA 2013 Conference Steering Committee.

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Measures:

For a description of various Research Measures developed by Family Nurses, see blog by Janice M. Bell, RN, PhD

Family Managment Measure
Kathleen Knafl, PhD, FAAN
kknafl@email.unc.edu

Methods:

(content under development)

Research focused on Practice Models:

Illness Beliefs Model
Lorraine Wright, RN, PhD and Janice M. Bell, RN, PhD
lmwright@ucalgary.ca; jmbell@ucalgary.ca

Projects:

A Caregiver Project: Moving on after a Brain Tumor
Janet Deatrick, PhD, RN, FAAN [IFNA Profile]
deatrick@nursing.upenn.edu

cu@home – YOUNG PARENT NURSE HOME VISITING program
Lindsay Smith, RN, BHlthSc(Nurs), MNS(Child Health), GradCertUnivLearn&Teach, PhD (candidate)
L.M.Smith@utas.edu.au

Diabetes: A Family Matter
Strengthening Communities to Prevent Diabetes in Rural Appalachia
Sharon Denham, DSN, RN  [IFNA Profile]
denham@ohio.edu

DPP Health Partners (Japanese)
Michiko Moriyama, PhD
morimich@hiroshima-u.ac.jp

Get a Head Start on Asthma Project
Indian Family Stories Project
Ann Garwick, PhD, RN LP LMFT FAAN  [IFNA Profile]
garwi001@umn.edu

Bibliography/Seminal works:

FAMILY RESEARCH: CONCEPTUAL AND METHODOLOGICAL ISSUES
Selected Bibliography developed by:
Dr. Kathleen Knafl (kknafl@email.unc.edu)
Associate Dean for Research and Frances Hill Fox Distinguished Professor
School of Nursing, University of North Carolina at Chapel Hill

Nature & Purpose of Family Research

*Bengtson, V.L., Accock, A.C., Allen, K.A., Dilworth-Anderson, P., & Klein, D.M. (2005). Theory and theorizing in family research. In V.L. Bengtson, A.C. Accock, K.A. Allen, P. Dilworth-Anderson, & D.M. Klein (Eds.), Sourcebook of family theory and research (pp. 3-33). Thousands Oaks, CA: Sage.

Beutler, I. F., Wesley, R., & Bahr, K. S. (1989). The family realm: Theoretical contributions for understanding its uniqueness. Journal of Marriage and the Family, 51, 805-816.

Crane, D.R., & Marshall, E.S. (Eds.). (2006). Handbook of families and health: Interdisciplinary perspectives. Thousand Oaks, CA: Sage.

*Fisher, L., Terry, H. E., & Ransom, D. C. (1990). Advancing a family perspective in health research: Models and methods. Family Process, 29, 177-189.

Ganong, L. H. (1995). Current trends and issues in family nursing research. Journal of Family Nursing, 1, 171-206.

Ganong, L. (2011). Return of the “Intimate Outsider”: Current trends and issues in family nursing research revisited.  Journal of Family Nursing, 17(4), 416-440.

Litman, T.J. (1974). The family as a basic unit in health and medical care: A social-behavioral overview. Social Science & Medicine, 8, 495-519. (A classic paper)

Park, M., & Chesla, C. (2007). Revisiting Confucianism as a conceptual framework for Asian family study. Journal of Family Nursing, 13, 293-311.

Street, E., & Soldan, J. (1998). A conceptual framework for the psychosocial issues faced by families with genetic conditions. Family Systems & Health, 16, 217-232.

Van Riper, M. (2010).  Genomics and the family: Integrative frameworks.  In K.P. Tercyak (Ed.), Handbook of genomics and the family (pp. 109-139).  New York, NY:  Springer.

Conceptual Underpinnings of Family Research

Boss, P. (2004). Ambiguous loss research, theory, and practice: Reflections after 9/11. Journal of Marriage and Family, 66, 51-566.

Gilliss, C. L. (1983). The family as a unit of analysis: Strategies for the nurse researcher. Advances in Nursing Science, 5(3), 50-59.

Griffin, D., & Gonzalez, R. (2003). Models of dyadic social interaction. Philosophical Transactions of the Royal Society of London, Series B Biological Sciences, 358(1431), 573-581.

Harman, J. J., & Amico, K. R. (2009). The relationship-oriented information-motivation-behavioral skills model: A multilevel structural equation model among dyads. AIDS and Behavior, 13(2), 173-184.

Knafl, K., Deatrick, J., & Gallo, A. (2008). The interplay of concepts, data, and methods in the development of the Family Management Style Framework. Journal of Family Nursing, 14, 412-428.

Knafl, K., & Deatrick, J. (2003). Further refinement of the Family Management Style Framework. Journal of Family Nursing, 9, 232-256.

Larsen, A., & Olson, D. H. (1990). Capturing the complexity of family systems:Integrating family theory, family scores, and family analysis. In T.W. Draper & A. Marcos (Eds.), Family variables: Conceptualization measurement, and use (pp. 19-47).  Newbury Park, CA: Sage.

Lingler, J. H., Sherwood, P. R., Crighton, M. H., Song, M. K., & Happ, M. B. (2008).Conceptual challenges in the study of caregiver-care recipient relationships. Nursing Research, 57(5), 367-372.

Park, M., & Chesla, C. (2007). Revisiting Confucianism as a conceptual framework for Asian family study. Journal of Family Nursing, 13, 293-311.

Rolland, J. (1999). Parental illness and disability: A family systems framework. Journal of Family Therapy, 21, 242-266.

Song, M., Sandelowski, M., & Happ, M. (2010). Current practices and emerging trends inconducting mixed methods intervention studies in the health sciences. In A.Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social & behavioral research (pp. 725-747). Thousand Oaks, CA: Sage.

Street, E., & Soldan, J. (1998). A conceptual framework for the psychosocial issues faced by families with genetic conditions. Family Systems & Health, 16, 217-232.

Van Riper, M. (2010). Genomics and the family: Integrative frameworks. In K.P. Tercyak (Ed.), Handbook of genomics and the family (pp. 109-139). New York, NY: Springer.

White, J. M., & Klein, D. M. (2007). Family theories (3^rd ed.). Thousand Oaks, CA: Sage.

General Design Issues in Family Research

Chesla, C., & Rungreangkulkij,S. (2001). Nursing research on family processes in chronic illness in ethnically diverse families: A decade review. Journal of Family Nursing, 7, 230-243.

*Feetham, S. (1991). Conceptual and methodological issues in research of families. In A. Whall & J. Fawcett, Family theory development in nursing: State of the science and art, (pp. 55-68). Philadelphia, PA: F.A. Davis.

Hadley, E.K., Smith, C.A.M., Gallo, A.M., Angst, D.B., & Knafl, K.A. (2008). Parents’ perspectives on having their children interviewed for research. Research in Nursing & Health, 31, 4-11.

Horowitz, J.A., Ladden, M.D., & Moriarty, H.J. (2002).  Methodological challenges in research with vulnerable families.  Journal of Family Nursing 8 (4), 315-333.

Lynn, M.R. (1995). Family research: Consideration of who to study. Journal of Pediatric Nursing, 10, 383-384.

*McCann, J.J., Hebert, L.E., Beckett, L.A., Morris, M.C., Scherr, P.A., & Evans, D.A.  (2000). Comparison of informal caregiving by black and white older adults in a community population.  Journal of the American Geriatrics Society, 48, 1612-1617.

Niska, K., Synder, M., & Lia-Hoagberg, B. (1999).  The meaning of family health among Mexican-American first-time mothers and fathers.  Journal of Family Nursing 5(2), 218-233.

Racher, F.E., Kaufert, J.M., & Havens, B. (2000). Conjoint research interviews with frail, elderly couples:  Methodological implications.  Journal of Family Nursing 6(4), 367-379.

Uphold, C., & Strickland, O. (1989). Issues related to the unit of analysis in family research, Western Journal of Nursing, 11, 405-417.

Qualitative & Mixed Methods Family Research

Ayres, L., Kavanaugh, K., & Knafl, K. (2003). Within and across-case approaches to qualitative data analysis. Journal of Qualitative Health Research, 13, 871-883.

Bell, L., Paul, D., St-Cyr Tribble, D., & Goulet, C.  (2000).  Strategies to elicit and analyze relational family data.  Journal of Family Nursing 6(4), 380-399.

Conger, R.D., Brainerd, D.W., Birch, L.L., Friedberg, P.J., & Navarro, L.A.  (1986).  Assessing the quality of family observations:  A comparative analysis.  Journal of Marriage and the Family 48, 361-373.

Coyer, S., & Gallo, A. (2005). Secondary analysis of data. Journal of Pediatric Health Care, 19, 60-63.

Fiese, B.H., & Spagnola, M. (2005). Narratives in and about families : An examination of coding schemes and a guide for family researchers. Journal of Family Psychology, 1, 51-61.

Fiese, B.H., & Wamboldt, F.S. (2003). Coherent accounts of coping with a chronic illness: Convergence and divergence in family measurement using narrative analysis. Family Process, 42, 3-15.

Gilgun, J. (2005). Qualitative research and family psychology. Journal of Family Psychology, 19, 40-50.

Gilgun, J. (1999). Methodological pluralism and qualitative family research. In S.K. Steinmetz, M.B. Sussman, & G. W. Peterson (Eds.). Handbook of marriage and the family (2^nd ed., pp 219-261). New York, NY: Plenum Press.

Gilgun, J. (2004). Deductive qualitative analysis and family theory-building. In V. Bengston, P. Dillworth Anderson, K. Allen, A. Acock, & D. Klein (Eds.). Sourcebook of family theory and research (pp. 83-85). Thousand Oaks, CA: Sage.

Harden, J.K., Northouse, L.L., & Mood, D.W. (2006). Qualitative analysis of couples’ experience with prostate cancer by age cohort. Cancer Nursing, 29(5), 367-377.

Knafl, K., & Ayres, L. (1996).  Managing large qualitative data sets in family research.  Journal of Family Nursing, 2, 350-364.

Knafl, K., & Deatrick, J. (2006). Family management style and the challenge of moving from conceptualization to measurement. Journal of the Association of Pediatric Oncology Nurses, 23, 12-18.

Leech, N., & Onwuegbuzie, A. (2009). A typology of mixed methods research designs. Quality and Quantity, 43, 265-275.

Quantitative Family Research

Bartle-Haring, S., Kenney, D., & Gavazzi, S.  (1999).  Multiple perspectives on family differentiation: Analyses by multitrait-multimethod matrix and triadic social relations model.  Journal of Marriage and the Family 61, 491-503.

Campbell, L., & Kashy, D. (2002). Estimating actor, partner, and interaction effects for dyadic data using PROC MIXED and HLM: A user-friendly guide. Personal Relationships, 9(3), 327.

Chang, A.-L., & Kelly, P. J. (2011). Application of a hierarchical model incorporating intrafamilial correlation and cluster effects.  Nursing Research, 60, 208-212.

Clarke, S.P.  (1995).  Methodological commentary:  Characteristics of families–implications for statistical analysis in family nursing research.  Canadian Journal of Nursing Research 27(1), 47-55.

Cook, W., & Kenny, D. (2005). The Actor-partner interdependence model: A model of bidirectional effects in developmental studies. International Journal of Behavioral Development, 29(2), 101.

Cook, W.L. (1994). A structural equation model of dyadic relationships within the family system. Journal of Consulting and Clinical Psychology, 62(3), 500-509.

Cook, W.L., & Kenny, D. A. (2006). Examining the validity of self-report assessments of family functioning: A question of the level of analysis. Journal of Family Psychology, 20(2), 209-216.

Davis, L.L.  (1993).  Family scores revisited–a comparison of three approaches to data aggregation.  Western Journal of Nursing Research 15(5), 649-657.

Deal, J.E.  (1995).  Utilizing data from multiple family members:  A within-family approach. Journal of Marriage and the Family 57, 1109-1121.

Deal, J.E., & Anderson, E.R. (1995).  Reporting and interpreting results in family research.  Journal of Marriage and the Family, 57, 1040-1048.

Dick, D.M., Johnson, J.K., Viken, R.J., & Rose, R.J.  (2000).  Testing between-family associations in within-family comparisons.  Psychological Sciences 11(5), 409-413.

Feetham, S.L., Perkins, M., & Carroll, R.  (1993).  Exploratory analysis:  A technique for the analysis of dyadic data in research of families.  In S. Feetham, S. Meister, J. Bell, & C. Gilliss (Eds.).  The nursing of families (pp. 99-110). Newbury Park, CA: Sage.

Ferketich, S.L., & Mercer, R.T.  (2002).  Focus on psychometrics in aggregating family data.  Research in Nursing & Health 15, 313-317.

Fisher, L., Kokes, R.F., Ransom, D.C., Phillips, S.L., & Rudd, P.  (1985).  Alternative strategies for creating “relational” family data.  Family Process 24(2), 213-224.

Kashy, D.A., & Snyder, D.K. (1995). Measurement and data analytic issues in couples research.  Psychological Assessment, 7(3), 338-348.

Jacobsen, B.S., Tulman, L., & Lowery, B.J. (1991).  Three sides of the same coin:  The analysis of paired data from dyads.  Nursing Research, 40(6), 359-363.

Johnson, D.R. (1995).  Alternative methods for the quantitative analysis of panel data in family research:  Pooled time-series models.  Journal of Marriage and the Family, 57, 1065-1077.

Maguire, M.C. (1999).  Treating the dyad as the unit of analysis:  A primer on three analytic approaches.  Journal of Marriage and the Family 61(1), 213-223.

McLaughlin, S.D., & Otto, L.B. (1981).  Canonical correlation analysis in family research. Journal of Marriage and the Family, 43(1), 7-16.

Kenny, D., Kashy, D., & Cook, W. (2006). Dyadic data analysis: New York, NY: Guilford Press.

Knafl, G., Knafl, K., & McCorkle, R. (2005). Mixed models incorporating intra-familial correlation through spatial autoregression. Research in Nursing & Health, 28, 348-356.

Knafl, G., Dixon, J., O’Malley, J., Grey, M., Deatrick, J., Gallo, A., Knafl, K. (2009). Analysis of cross-sectional univariate measurements for family dyads using linear mixed modeling. Journal of Family Nursing, 15, 130-151.

Lynn, M.R. (1995). Family research: Consideration of who to study. Journal of Pediatric Nursing, 10, 383-384.

Lavee, Y., McCubbin, H.I., & Patterson, J.M.  (1985).  The double ABCX model of family stress and adaptation:  An empirical test by analysis of structural equations with latent variables.  Journal of Marriage and the Family, Nov.,811-825.

Lyons, K.S., & Sayer, A.G. (2005). Longitudinal dyad models in family research. Journal of Marriage and the Family, 67(4), 1048-1060.

Olsen, J.A., & Kenny, D.A. (2006). Structural equation modeling with interchangeable dyads. Psychological Methods, 11(2), 127-141.

Rayens, M.K., & Svavarsdottir, E.K. (2003). A new methodological approach in nursing research: An actor, partner, and interaction effect model for family outcomes. Research in Nursing and Health, 26(5), 409-419.

Roberts, R.E.L., & Bengtson, V.L.  (1995).  Assessing familial and nonfamilial sources of parent-child attitude resemblance over two measurement occasions. In L.M. Collins & J.L. Horn (Eds.).  Best methods for analysis of change (pp. xx-xx).Washington, D.C.:  APA.

Szinovacz, M.E., & Egley, L.C.  (1995). Comparing one-partner and couple data on sensitive marital behaviors:  The case of marital violence.  Journal of Marriage and the Family, 57, 995-1010.

Teachman, J.D., Carver, K., & Day, R.  (1995).  A model for the analysis of paired data. Journal of Marriage and the Family, 57, 1011-1024.

Thompson, L., & Walker, A.J.  (1982).  The dyad as the unit of analysis:  Conceptual and methodological issues.  Journal of Marriage and the Family, 44(4), 889-900.  (a classic paper)

Thomson, E., & Williams, R.  (1982).  Beyond wives’ family sociology:  A method for analyzing couple data.  Journal of Marriage and the Family, 44(4), 999-1008.

Uphold, C.R., & Strickland, O.L. (1989).  Issues related to the unit of analysis in family nursing research.  Western Journal of Nursing Research, 11(4), 405-417.

West, T.V., Popp, D., & Kenny, D.A. (2008). A guide for the estimation of gender and sexual orientation effects in dyadic data: An actor-partner interdependence model approach. Personality and Social Psychology Bulletin, 34(3), 321-336.

Wickrama, K.A.S., Lorenz, F.O., Conger, R.D., & Elder, G.H.  (1997).  Marital quality and physical illness:  A latent growth curve analysis.  Journal of Marriage and the Family 59, 143-155.

Measurement of Family Variables

Alderfer, M.A., Fiese, B.H., Gold, J.I., Cutuli. J.J., Holmbeck, G.N., Goldbeck, L., Chambers, C. T., Abad, M., Spetter, D., & Patterson, J. (2008). Evidence-based assessment in pediatric psychology: Family measures. Journal of Pediatric Psychology, 33, 1046-1061. (Don’t miss the supplemental data on-line at this article’s e-journal site: http://jpepsy.oxfordjournals.org.libproxy.lib.unc.edu/cgi/content/full/jsm083/DC1)

Ganong, L. (2003). Selecting family measurements. Journal of Family Nursing, 9, 184-206.

Knafl, K., & Deatrick, J. (2006). Family management style and the challenge of moving from conceptualization to measurement. Journal of Pediatric Oncology Nursing, 23, 12-18.

Neabel, B., Fothergill-Bourbonnais, F., & Dunning J. (2000). Issues in family care. Family assessment tools: A review of the literature. Heart and Lung: Journal of Acute & Critical Care, 29, 196-209.

Lou, H., Birthe, D., Pedersen, D., & Hedegaard, M. (2009). Questions never asked. Positive family outcomes of extremely premature childbirth. Quality of Life Research, 18, 567-573.

Intervention Research with Families

Berry, D., Sheehan, R., Heschel, R., Knafl, K., Melkus, G., & Grey, M. (2004). Family-based interventions for childhood obesity: A review. Journal of Family Nursing, 10, 429-449.

Burke, S. (2001). Effects of stress-point intervention with families of repeatedly hospitalized children. Journal of Family Nursing, 7, 128-158.

Chesla, C.A. (2010).  Do family interventions improve health?  Journal of Family Nursing, 16(4), 355-377.

Carr, A., (2009). The effectiveness of family therapy and systemic interventions for child-focused problems. Journal of Family Therapy, 31, 3-45.

Fisher, L. & Weihs, K. (2000). Can addressing family relationships  improve outcomes in chronic disease? The Journal of Family Practice, 49, 561-566.

Kazak, A., (2005). Evidence-based interventions for survivors of childhood cancer and their families. Journal of Pediatric Psychology, 39, 29-39.

Lauver, D.R., Ward, S.E., Heidrich, S.M., Keller, M.L., Bowers, B.J., Brennan, P.F., Kirchhoff, K.T., & Wells, T.J. (2002). Patient-centered interventions. Research in Nursing & Health, 25(4), 246-255.

McBroom, L.A., & Enriquez, M. (2009). Review of family-centered interventions to enhance the health outcomes of children with type 1 diabetes. The Diabetes Educator, 35, 428-38.

Robinson, C.A., & Wright, L.M. (1995). Family nursing interventions: What families say makes a difference. Journal of Family Nursing, 1, 327-345.

Research Reports of Family and Dyadic Studies

Barakat, L.P., Patterson, C.A., Weinberger, B.S., Simon, K., Gonzalez, E.R., & Dampier, C. (2007). A prospective study of the role of coping and family functioning in health outcomes for adolescents with sickle cell disease. Journal of Pediatric Hematology / Oncology, 29, 752-760.

Beardslee, W.R., Gladstone, T.R.G., Wright, E.J., & Cooper, A.B. (2003). A family-based approach to the prevention of depressive symptoms in children at risk: Evidence of parental and child change. Pediatrics, 112, 119-131.

Conger, R.D., Brainerd, D.W., Birch, L.L., Friedberg, P.J., & Navarro, L.A.  (1986).  Assessing the quality of family observations:  A comparative analysis.  Journal of Marriage and the Family 48, 361-373.

Ford-Gilboe, M.  (1997).  Family strengths, motivation and resources as predictors of health promotion behavior in single-parent and two-parent families.  Research in Nursing and Health, 20, 205-217.

Knafl, K., Knafl, G., Gallo, A., & Angst, D. (2007). Parents’ perceptions of functioning in families having a child with a genetic condition. Journal of Genetic Counseling, 16, 481-492.

Mills-Koonce, W. R., Propper, C. B., Gariepy, J. L., Blair, C., Garrett-Peters, P., & Cox, M. J. (2007). Bidirectional genetic and environmental influences on mother and child behavior: The family system as the unit of analyses. Development and Psychopathology, 19, 1073-1087.

Ozono, S., Saeki, T., Inoue, S., Mantani, T., Okamura, H., & Yamawaki, S. (2005). Family functioning and psychological distress among Japanese breast cancer patients and families. Supportive Care in Cancer, 13(12), 1044-1050.

Methodology:  Qualitative Family Research

Ayres, L., Kavanaugh, K., & Knafl, K. (2003). Within and across-case approaches to qualita- tive data analysis. Journal of Qualitative Health Research, 13, 871-883.

Breitmayer, B., Ayres, L., & Knafl, K. (1993). Triangulation in qualitative research: Evaluation of confirmation and completeness purposes. Image, 25, 237-243.

Hadley, E., Smith, C., Gallo, A., Angst, D., & Knafl, K. (2008). Parents’ perspectives on inter-viewing their children for research. Research in Nursing & Health, 31, 4-11.

Knafl, K., & Ayres, L. (1996). Managing large qualitative data sets in family research. Journal of Family Nursing, 2, 350-364.

Knafl, K. A., & Breitmayer, B. (1989). Triangulation in qualitative research: Issues of conceptual clarity and purpose. In J. Morse (Ed.), Qualitative nursing research: A contemporary dialogue (pp. 209-220). Rockville, MD: Aspen.

Knafl, K., & Breitmayer, B. (1991). Triangulation in qualitative research: Issues of conceptual clarity and purpose. In J. Morse (Ed.), Qualitative nursing research: A contemporary dialogue (rev. ed., pp. 226-239). Newbury Park, CA: Sage.

IFNA Research Committee

Purpose: Advance the conduct, dissemination, and use of family nursing research worldwide.

Chair: Ann Garwick – garwi001@umn.edu
Co-chair: Janet Deatrick – deatrick@nursing.upenn.edu
Board Liaison: Suzanne Feetham – stfeetham@earthlink.net